Ashley, a 41-year-old advocate from Florida, has spent the last decade navigating life with diabetic macular edema (DME)—a complication of diabetes that affects the eyes. Diagnosed with type 1 diabetes at age 12, she began experiencing vision issues nearly 10 years ago. Since then, she’s become a passionate voice for others living with DME, sharing her journey and raising awareness on platforms like her blog Sugar Shots and Pins and through her writing on HealthCentral.
Ashley understands that while many people are familiar with diabetes, fewer know about DME. She often finds herself explaining it from a personal perspective.
“Diabetic macular edema happens when diabetes damages the blood vessels in the eyes,” she says. “High or fluctuating blood sugar weakens these vessels, causing them to leak into the macula.”
The macula is responsible for central vision—what allows people to see fine detail. When fluid builds up in the macula, it causes swelling and thickening of the retina, which can lead to blurred or distorted vision.
Ashley describes her experience in practical terms: “It’s like losing the sharpness in your vision. Sometimes, I can’t see the details in someone’s face unless I’m up close.”
She also compares the visual distortions to seeing “gnats, flies, or strands of hair” constantly floating in her sight, especially against bright backgrounds. Bright sunlight is particularly harsh: without sunglasses, she sees mostly white and experiences a foggy haze.
Despite these daily challenges, Ashley remains committed to supporting others. “If you’re battling DME, I hope this helps you feel less alone,” she says. “This journey can feel daunting, but it’s one we’re walking together.”
Her message is one of resilience and community: living with DME is tough, but with awareness, support, and the right tools, it becomes manageable.
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